Tag Archives: cancer

A Tribute to Walt Pascoe: Savage Uncertainties On The Road Home Reprise

Walt PascoeOn December 21, 2015–Winter Solstice, the day with the longest night of the year–a dear friend and an extraordinary human being said goodbye to life on earth. His name is Walt Pascoe and many of you know of his very human, honest, luminescent, and soaring artwork–artwork that matches his spirit completely. Many of you also knew the man himself–and, if so, feel the loss keenly.

Walt wrote an essay, accompanied by artwork, for Creative Thresholds three years ago–it ran December 21, 2012 (this is uncanny, perhaps fitting)–about his struggle with colon cancer. A searing, poignant, and brutally honest account of his experience. I’m choosing to run it again in honor of this amazing human being and friend.

We miss you, Walt.

Melissa
Curator/editor

Savage Uncertainties On The Road Home

by Walt Pascoe

And but so yeah.

Having recovered nicely from the insult of surgery to resect 10 inches of my large intestine, I was more or less happily bobbing back up to the surface of my murky little emotional pond. It had been disappointing to learn that cancer cells were already frolicking around my lymph system like unruly children, and that the tender wisdom of western medical modalities dictated a course of prophylactic chemo. But after a brief time for contemplation and acceptance I’d come to terms with “stage 3” and prepared myself accordingly. There was the relatively minor surgery to insert a semi-permanent, sub-cutaneous port in my chest for easy access to a major artery, and the inevitable institutional waltz w/ the doctors office and insurance company to pre-approve this gold-plated poisoning. And finally a couple more visits to the various scan-masters for more complete head to thigh reconnoitering of my tender corpus, in order to be doubly sure there were no other cancerous redoubts hidden under a rock somewhere. All this transpired in a relatively compressed time-frame, the doctors and staff proceeding w/ an admirable, if not entirely reassuring, sense of professional urgency. And so it came to pass that my oncologist only received the latest reports the night before I showed up to begin chemo infusions.

The six-month course of chemo for my particular cancer goes by the vaguely militaristic sounding acronym FOLFOX. Essentially it involves kicking back in the coolest recliner you’ve ever seen while various anti-nausea meds and the main chemical arsenal are deployed sequentially for a few hours. (What is it with all the battle metaphors?) One of the meds is more effective if administered in small bursts over 46 hours, so before you’re allowed to leave a pump is hooked up to your port and you wear this home. Its a robust little programmable squirt machine that looks more or less like the FedEx guys’ scanner, and you get to wear it on a belt around your waist or over your shoulder. So much for any shred of sartorial hipness I might have been clinging to in the waning years of middle age semi-decrepitude. On the bright side, the pump makes a rhythmic clicking sound which, while lying on the bed next to me at night, is not without a certain comforting intimacy…

“Incantations on the Road Home” 48”x64” Graphite on gessoed panel

“Incantations on the Road Home” 48”x64” Graphite on gessoed panel

Wait… what?

But I’m getting ahead of myself. Turns out there was in fact a further metastasis. Stage 4. Another decent sized tumor wrapped around a bronchial tube near the entry point into my left lung, snuggly nestled next to my heart; a weirdly poetic location given the stressful mid-life transitions I’d been enduring of late, but one that rendered it inoperable. So a second biotherapy (a monoclonal antibody called Avastin) was added to the FOLFOX chemo regimen, all to be administered over a 6 month period…

“Raven Gets In” 48”x60” Oil on canvas

“Raven Gets In” 48”x60” Oil on canvas

“I always put lime on the people I kill. Wait… are you calling 911?” ~ Drunk guy in a Mexican restaurant, as related by my friend Melissa Johnston.

And so it seems that cancer has created the mother of all liminal spaces in my life. And it is from this strangely pregnant territory that I peer out into the… I want to say abyss… but like so many words now it seems inadequate, overused, and worked to within an inch of its word-ly life by the incessant hype culture hum we wallow in. The title of some crappy movie, complete with cross-licensed plastic action figures free w/ your next Happy Meal. And seriously, how many of us ever reach beyond the tremulous shadow of the concept and endeavors to actually process this deep down inside our whirring, buzzing lizard-brains? It crouches at the center of your chest like a cold rock, pulling you down through the turbid water more effectively than the finest cement shoes. Who the heck would want to go there voluntarily? Who…

“Fatal Shore” 48”x64” Acrylic on canvas

“Fatal Shore” 48”x64” Acrylic on canvas

Blaise Pascal wrote in “Pensées,” “We run heedlessly into the abyss after putting something in front of us to stop us from seeing it.”

It’s amazing how emotions flow just like weather.

I can go along doing what I think of as “well”: feeling optimistic, comfortable being alone, celebrating the liminal, accepting the transitory nature of things, handling the chemo, sensing health and wholeness on a walk in Whites Woods, meditating, reading, feeling a measured enthusiasm for the future w/o treating the present like just something to be got through, the master of silver linings, counting my blessings, deeply grateful for the love and support of my friends and family, acquaintances at the Post Office saying “hey, you look great”, relieved by the fact that I haven’t yet assumed the grayish-blue pallor of the wasting.

And then there will be this slow creeping intimation of unease, like a little darkening on the horizon. Just a few clouds on an otherwise sunny day…

Stillness and solitude in White’s Woods, Litchfield

Stillness and solitude in White’s Woods, Litchfield

Willem DeKooning referred to himself as a “slipping glimpser”.

As the storm gathers and starts to darken my interior landscape I can feel the slipping; the accumulation of tension in my heart and body. Fear, longing, and worry… a somatic ache that fluidly transmutes into a profound and painful spiritual dread if not checked quickly by some distraction. This is where it gets tricky being alone. It is so much easier to distract yourself from it when you are with other people. Just ignore and bury it in the cosmopolitan joy of human culture and friendship. Or loose yourself engineering a life.

“[…] almost nothing important that ever happens to you happens because you engineer it. Destiny has no beeper; destiny always leans trenchcoated out of an alley with some sort of ‘psst’ that you usually can’t even hear because you’re in such a rush to or from something important you’ve tried to engineer. ”
~ David Foster Wallace in “Infinite Jest”.

I guess this terror has always been present, and is for every human being. We do with it what we will. Tune it out. Turn it into art or literature. Transmogrify the brutal fact of our inevitable decay into infinite varieties of work and the illusion of progress. Am I thinking too much?! This is not always true. There are times when laughter and joy come in solitude and I can revel in it. But the laughter is hardened and forced when you are filled w/ grief at the prospect of loosing all you love… threatened in such an immediate, tangible way… I’m attached to my attachments! A lousy Buddhist if ever there was one! It’s amazing how I can go along feeling buoyant about the possibility of remission… and oh the delirious possibility of “durable remission”, held out there like the most seductive of outcomes. And then just tank for awhile… fall into the dark… gazing up into a night sky perversely ornamented with PET scan constellations of cancerous cells awash in radioactively tagged glucose, collaged all over my chest and neck, blinking out an inscrutable code… exhausted from the grasping after some more universal, ever-present , capital “L” Love. God. Some hopeful bulwark against the immensity of the void surrounding my fearful and trembling self. A glimpse perhaps…

The Real Work

It may be that when we no longer know what to do

we have come to our real work,

and that when we no longer know which way to go

we have come to our real journey.

The mind that is not baffled is not employed.

The impeded stream is the one that sings.

~ Wendell Berry ~

(Collected Poems)

And so it goes. Alone with the Alone. It is a choice. A pseudo-monastic exile, punctuated by genuinely caring and helpful visits from my loved ones and the logistics of the chemo rhythm. Simone Weil said “attention is the rarest and purest form of generosity”…

"Exile Study No.4 ~ Perdita" ink and graphite on paper, 22"x 30",

“Exile Study No.4 ~ Perdita” ink and graphite on paper, 22″x 30″

And what exactly is it that I am attending to now?

Seeking Now through mindful solitude. That word, though: seeking! Seeking itself one of the most seductive of attachments. After the briefest foray into the silence, I flee back into the endless loop of intellectual and aesthetic dialogue w/ the dead. With those I’ve chosen to valorize as artistic mentors for 30 years: David Smith and Charles Olson. And into the radiating web of endlessly fascinating threads that fan out from their volcanic productions. Back into yet another painting or drawing, searching searching searching, always searching… wading through a rich but terrifying uncertainty…

“The Secret Life of Wind” 48”x64” graphite on gessoed panel

“The Secret Life of Wind” 48”x64” graphite on gessoed panel

“Sometimes when I start a sculpture, I begin with only a realized part, the rest is travel to be unfolded much in the order of a dream. The conflict for realization is what makes art not its certainty, nor its technique or material.”
–David Smith

In Alex Stein and Yahia Lababidi’s wonderful conversation, “The Artist as Mystic”, Yahia quotes Heidegger: “Longing is the agony of the nearness of the distant.” This resonates now. Not just a little! The words vibrate in my chest as if I were standing alongside a huge, beautifully wrought bell being rung. Small pieces of the rock crouching there begin to fall…

“The Chain of Memory is Resurrection I” 30”x40” graphite and acrylic on bristol board

“The Chain of Memory is Resurrection I” 30”x40” graphite and acrylic on bristol board

 

Writer and artist: Walt Pascoe

Please check out more of Walt’s art at http://www.waltpascoe.com/.

Humanscapes

By Nicholas Quin Serenati

Humanscapes is the final post in a three-part series, which began with Locating Place: Fragments of an Illness.

About the series: Illness experience is a resource for experiential knowledge. To that extent, it is important to understand that life has infinite spaces which can be experienced. My work is concerned with phenomenological experiences that transform these spaces into places. These places become the foundations in our individual lives – the construct of our identity. The work in this series is intended to ascertain an understanding of the ways meaning–making functions as a method for healing, and how the creative process operates to uncover and identify new metaphors that best communicate illness experience to others.

 

HUMANSCAPES

 

In Bob Trowbridge’s book, The Hidden Meaning of Illness: Disease as a Symbol and Metaphor, a philosophical engagement is established with how illness penetrates the process of being human. What illness does for a person is quite unique and individualized. For me, I find that illness is an experience that can stifle and complicate the order of living. However, I believe that illness experience offers an opportunity to transcend the basic containment of being ill and evolve into a more knowledgeable and inspired being. Similar to the process of art making, illness is a process of discovery. During illness experience, an opportunity arises to untether from the superficialities that compound life and embrace the moments of being vulnerable, confused and weak in order to flourish in strength, beauty and wisdom.

Humanscapes presents an extremely straightforward and customary point of view on illness. The work embodies the typical tone and nature that possesses aggression and horror. Humanscapes is an exploration of the human condition as I perceive it to be through my illness experience. Specifically, the exploration dealt with juxtaposition of content – image and poetry – and in doing so, the overarching philosophical questions emerges: what would resonate?

 

 

Collected Spaces

 

Nicholas Serenati 1

 

Pathosis.

Death comes during the twilight.
An opera of suffocating screams,
tuned in the key of pain.
Pitch perfect, echoing across barren landscapes.
Injections, ravenous poison, constricting veins.
Internal asphyxiation.

A lifeless marionette standing on a thorn’s edge of a cacti.
Sand storms perform a ritual dance
to a fiddling devil, vultures circle above.
Breath shallows, eyes hollow, heart slows, flesh blisters.
Red-eyed from hearing my mother’s cry.
Tears from angels come crashing down, loud.
Collected by the hands of a decomposing crowd.
Now, we can bathe, and be covered in a linen shroud.

Traces of red from these fingertips,
Ink that flows and pens this script.
What is left are bloodstains,
from life’s dismissed.
I’d be remiss, if a history of illness went claimless.
Anabiosis.

 

Timberland

 

Nicholas Serenati 2
I tasted illness.

Flavored by metallic bitterness of wicked misery,
It sped through my veins.
A devouring plague,
An internal decomposition;
The memory hangs in the timberland of my mind.
Silent, static, yet ever present.

 

 

Matches

 

Nicholas Serenati 3

 

I sympathize with those who lie still.
The light has escaped them;
and now, darkness.

I find it eerily near.
Stillness.
Vulnerability that will always remain.

In the shadows,
just as ugly.
Dark separation is home.

Shadows misplaced,
Lying dormant with others.

 

 

Windows

 

Nicholas Serenati 4

 

Overshadowed by internments of negative space,
Reflection blinds the wonder of escape.

A room,
Void of definition, exists little to name.
Balanced by masses,
Whispers of nothingness fall short of noise.

Beneath an image is the image.
Transcending the real for a rendering of another;
The antagonistic image that requires such attention.

Light, the consciousness of wisdom;
Darkness, its frame

 

 

The Old Oak House

 

Nicholas Serenati 5

 

A splintering in the wood on the side of this old oak house reminds me of that winter.

Crackling echoes through the chilled air from slivers separating.

This old oak house is in ruins, decaying inside out.

I stand by the window looking out.

My fingers run across the weathered wood interior,

Pieces of the old oak break away and fall around my feet.

 

That morning, trees stood still, birds frozen in flight.

Water ran down the grooves of the rusted metal roof, down the pane of glass

Like rain, dropping down upon my forehead.

The old oak house dampened.

The crackling grew louder.

Light from the sun turned away and darkness loomed.

 

Near the old oak house, a river cut through the land like a knife.

Steam from the water smothered a rolling landscape,

A scorching water flow.

Condensation ran down trunks of trees, off tips of leaves, down the plank wood siding

of the old oak house.

Soaked was the landscape.

 

Just beyond the old oak house, past the riverbank, into the distance, a forest.

From the thicket of brush and pine, a dark horse emerged.

Massive and stoic it stood, flaring its nostrils, sensing the frigid still air.

Black, lifeless eyes peered in the direction of the old oak house.

 

With a gait slow and steady, the dark horse neared.

I moved aside of the window, peering out carefully

Fear lumped in my throat as his presence grew broader.

The dark horse approached the edge of the riverbank.

Blood trickled from his fractured hooves into the water.

The red streamed down current.

I gasped from inside that old oak house; the dark horse stared.

That is where we remained.

 

Nicholas Quin SerenatiNicholas Quin Serenati is an interdisciplinary scholar-artist whose work is defined by arts-based research that explores the potential of medium and discipline in liminal spaces. With a practice rooted in locating one’s place, Serenati employs video, creative writing, photography, sound, installation and performance to investigate forming situations that direct his research around illness and metaphor.

Serenati’s intellectual practice deeply engages the creation of meaning – form and function – and the articulation of story throughout the investigative process. Themes of trauma, identity, illness, disability, experimental narrative, social constructivism, sound and language are all contributing factors to Serenati’s work as a critical discourse. Serenati’s scholarly-art practice is intended to investigate phenomena as a way of achieving profound knowledge of theory, philosophy and art.

Based out of St. Augustine, Florida, Serenati holds a BA in Communications from Flagler College, an MFA in Interdisciplinary Arts from Goddard College, and is a candidate for his Ph.D. in Interdisciplinary Studies: Humanities and Culture from Union Institute & University. He is currently the Art Director / Dept. Chair of the Cinematic Arts program at Douglas Anderson School of the Arts and an adjunct professor of media and cinema studies at Flagler College.

Serenati’s dissertation, ReFraming Leukemia: Metaphorizing Illness as Windows, will be completed May 2014, and the installation of the project is set for early 2015 in St. Augustine, Florida.

Twitter: @nqserenati
Website: nqserenati.com

Reclaiming Experiential Residue: Misconceptions

by Nicholas Quin Serenati

Reclaiming Experiential Residue: Misconceptions is the second of a three-part series, which began with Locating Place: Fragments of an Illness. The third and final part is Humanscapes.

About the series: Illness experience is a resource for experiential knowledge. To that extent, it is important to understand that life has infinite spaces which can be experienced. My work is concerned with phenomenological experiences that transform these spaces into places. These places become the foundations in our individual lives – the construct of our identity. The work in this series is intended to ascertain an understanding of the ways meaning–making functions as a method for healing, and how the creative process operates to uncover and identify new metaphors that best communicate illness experience to others.


 

Reclaiming Experiential Residue: Misconceptions

Illness is a window to foresight. My proposed metaphor is a dynamic performance. This metaphor encompasses experience, object, space, language, sound, translation and meaning as a surfacing of my experience with illness. I have chosen a window for two significant attributes: an object – a way of being, and a lens – a way of seeing. With this approach, the window is a reconstitution of my body in a place – or experience – that is designed by time and space. Time, within the relationship of this video, provides insight into a spatiotemporal system. This system is intended to shape perception and impart meaning. Employing this conceptual system of spatiotemporal thinking has a history that also needs unpacking.

In 1922, Sigmund Freud published his analysis of the conventional understanding of traumatic neurosis in his book, Beyond the Pleasure Principle. In Freud’s analysis, he identified two major effects of traumatic neurosis that go beyond the conservative notion of physical injury (8). Most critical to Freud’s analysis are two polarizing and complex effects. First, the idea of a negative effect is characterized by the defensive action of suppressing the traumatic event as a method of avoiding a reliving of the event. The second, the positive effect, is using methods to bring the event back into operation, or as Freud states, “confirm the reconstruction of [the patient’s] own memory” (17-18). It is of my opinion that the positive effect approach exercises with success illness experience. Presently, this approach can be deemed most effective by contemporary applications such as journaling and creative outputs (i.e., painting, drawing, photography, etc.) and will play a central role in the theory that underpins this project.

In elaborating on illness experience, a trauma is absorbed and an influential preoccupation with that experience becomes rooted in the psyche of the patient. This preoccupation can have a deeply profound result on the way an individual perceives and lives with illness experience. Through methods of positive effect approaches – repeating, reliving and re-organizing – the traumatic experience will serve as a source of knowledge building. In using video art as the method of positive effect operation, there exists a fascinating application with digital media that support, and in some cases, goes beyond the ideas presented by Freud when it comes to “repetition-compulsion” (Freud, 19).

The idea of repetition and compulsion is a landmark in video art and I will use this method to emphasize the focus of the work’s investigation of metaphorical construction and meaningful subtext. For example, one key component to the structure of video art is time.  Through the employment of repetition, or the loop, time can be utilized to suspend the real so that a greater attention can be paid to an element that may be, in the real, too small.  More specifically, the idea is to narrow the scope of time on a particular sequence of footage, lock in a specific set of in and out points within the timecode of the video, and encode a repetitious sequence that delivers a cycle meditated on a specific idea(s). Another key component in the structure of time is the notion of speed. The rendering of speed not only shifts the paradigm of what is believed to be footage of real time, it also changes the context by ramping up or slowing the speed down to a hyper-real interpretation. In influencing these few attributes, the work moves outside of normality and is reconfigured to communicate a new perception of reality – or provide exposure to an augmented reality.

This augmented reality is a justification of constructing methods of sight. Time and space manipulation of the video project will inform the ways the work is engaged, meditated, and understood. For instance, the window is the conceptual anchor – for being and seeing differently. The concept of a window extracted from its traditional context and placed directly in an aesthetic situation, is intended to communicate an idea of illness within the body.

Misconceptions (2012) is a body of work that enforces the notion of repetition, time, and space. Additionally, the work was produced from a mixed methodology approach involving the weaving of my Buddhist mediation practice and art practice. From this particular approach, the objective is to select a location that I am interested in investigating – at times it is planned and others it is meant to be spontaneous and thus would explain my work with new media and mobile devices – and I arrange my meditation session along with the setup of my camera. If I choose video, I record the entire meditative session. If I choose still photography, I wait to the moment that my meditation is complete and I either use a short or long exposure to capture the moment. Misconceptions employs video as the means of documentation and a window as a center of interest. Interestingly enough, this experience inspired some creative writing that I shortly after I stopped recording the session. Later, I recorded the prose with a talent that I frequently use in my pieces and embedded the audio track in the video to complete the work. This project was the first in a series of experiments intended on achieving dharma art.


Nicholas Quin SerenatiNicholas Quin Serenati is an interdisciplinary scholar-artist whose work is defined by arts-based research that explores the potential of medium and discipline in liminal spaces. With a practice rooted in locating one’s place, Serenati employs video, creative writing, photography, sound, installation and performance to investigate forming situations that direct his research around illness and metaphor.

Serenati’s intellectual practice deeply engages the creation of meaning – form and function – and the articulation of story throughout the investigative process. Themes of trauma, identity, illness, disability, experimental narrative, social constructivism, sound and language are all contributing factors to Serenati’s work as a critical discourse. Serenati’s scholarly-art practice is intended to investigate phenomena as a way of achieving profound knowledge of theory, philosophy and art.

Based out of St. Augustine, Florida, Serenati holds a BA in Communications from Flagler College, an MFA in Interdisciplinary Arts from Goddard College, and is a candidate for his Ph.D. in Interdisciplinary Studies: Humanities and Culture from Union Institute & University. He is currently the Art Director / Dept. Chair of the Cinematic Arts program at Douglas Anderson School of the Arts and an adjunct professor of media and cinema studies at Flagler College.

Serenati’s dissertation, The ReFraming of Leukemia: Metaphor, Buddhism, Art and Illness Experience, will be completed May 2014, and the installation of the project is set for early 2015 in St. Augustine, Florida.

Twitter: @nqserenati
Website: nqserenati.com

 

Locating Place: Fragments of an Illness

by Nicholas Quin Serenati

Locating Place: Fragments of an Illness is the beginning of a three-part series. The next installment is Reclaiming Experiential Residue: Misconceptions.

About the series: Illness experience is a resource for experiential knowledge. To that extent, it is important to understand that life has infinite spaces which can be experienced. My work is concerned with phenomenological experiences that transform these spaces into places. These places become the foundations in our individual lives – the construct of our identity. The work in this series is intended to ascertain an understanding of the ways meaning–making functions as a method for healing, and how the creative process operates to uncover and identify new metaphors that best communicate illness experience to others.

 

Screenshot 1, Fragments of an Illness, 2011

Screenshot 1, Fragments of an Illness, 2011

 

We all have bodies. This is not a truism. It is not an exercise in the obvious. It is a fact – and a fact of a special kind. It is an incontestable fact. Everything we do, we do as or by means of our body. We cannot get beyond the fact that we are bodies. The body is, simply put, where everything in human culture begins and ends.     

(Tobin Siebers, Disability Aesthetics)

 

Screenshot 2, Fragments of an Illness, 2011

Screenshot 2, Fragments of an Illness, 2011

When I look at the work that I have produced as an artist, I have come to realize the importance of the body as the locus for inquiry and discovery. The idea of the body as a critical lens for investigating the theoretical and philosophical implications of representation and voice in illness experience is a common thread in my work – whether consciously or subconsciously. My unrelenting interest of the body can most easily be attributed to a personal experience with illness when in 2001 I was diagnosed with Acute Myelogenous Leukemia (AML).

Screenshot 3, Fragments of an Illness, 2011

Screenshot 3, Fragments of an Illness, 2011

Being a young man at the time, the profundity of this experience sparked a curiosity of the human condition that has lingered in many ways over the course of 13 years in remission. Most notably, my illness experience has emerged as a significant preoccupation in my research and creative work. Mortality, representation, voice, identity, humanness, Buddhism, metaphors, illness and disability studies as well as the formal and experimental aesthetics that encompass my art practice, have all played a vital role in the identification of place in my life.

Screenshot 4, Fragments of an Illness, 2011

Screenshot 4, Fragments of an Illness, 2011

The study of the bodymy body – as a territory occupied by illness is my attempt to pierce to the marrow of the questions that inform my art practice. That is why I believe it is through the study of illness experience that a deeply engaged and meaningful source for experiential knowledge can be achieved.

In this particular exploration, I employed video and sound design to execute a reconstruction of experience.

Screenshot 5, Fragments of an Illness, 2011

Screenshot 5, Fragments of an Illness, 2011

The result is my 2011 film, Fragments of an Illness. This film came to exist as a final research project in my doctoral course, HMS 711: The Human Condition: Pursuit of Happiness. Fragments of an Illness situates specific recollections as a metaphorzed-reality within the film. Presented with a concentration into the blending of speed, color, composition, language, sound, and narrative establishment(s), these fragments were my attempt to bridge a dialogue about illness with the aesthetics of the medium and conceivable metaphorical notions.

 

Nicholas Quin SerenatiNicholas Quin Serenati is an interdisciplinary scholar-artist whose work is defined by arts-based research that explores the potential of medium and discipline in liminal spaces. With a practice rooted in locating one’s place, Serenati employs video, creative writing, photography, sound, installation and performance to investigate forming situations that direct his research around illness and metaphor.

Serenati’s intellectual practice deeply engages the creation of meaning – form and function – and the articulation of story throughout the investigative process. Themes of trauma, identity, illness, disability, experimental narrative, social constructivism, sound and language are all contributing factors to Serenati’s work as a critical discourse. Serenati’s scholarly-art practice is intended to investigate phenomena as a way of achieving profound knowledge of theory, philosophy and art.

Based out of St. Augustine, Florida, Serenati holds a BA in Communications from Flagler College, an MFA in Interdisciplinary Arts from Goddard College, and is a candidate for his Ph.D. in Interdisciplinary Studies: Humanities and Culture from Union Institute & University. He is currently the Art Director / Dept. Chair of the Cinematic Arts program at Douglas Anderson School of the Arts and an adjunct professor of media and cinema studies at Flagler College.

Serenati’s dissertation, ReFraming Leukemia: Metaphorizing Illness as Windows, will be completed May 2014, and the installation of the project is set for early 2015 in St. Augustine, Florida.

Twitter: @nqserenati
Website: nqserenati.com

 

Savage Uncertainties On The Road Home

by Walt Pascoe

And but so yeah.

Having recovered nicely from the insult of surgery to resect 10 inches of my large intestine, I was more or less happily bobbing back up to the surface of my murky little emotional pond. It had been disappointing to learn that cancer cells were already frolicking around my lymph system like unruly children, and that the tender wisdom of western medical modalities dictated a course of prophylactic chemo. But after a brief time for contemplation and acceptance I’d come to terms with “stage 3” and prepared myself accordingly. There was the relatively minor surgery to insert a semi-permanent, sub-cutaneous port in my chest for easy access to a major artery, and the inevitable institutional waltz w/ the doctors office and insurance company to pre-approve this gold-plated poisoning. And finally a couple more visits to the various scan-masters for more complete head to thigh reconnoitering of my tender corpus, in order to be doubly sure there were no other cancerous redoubts hidden under a rock somewhere. All this transpired in a relatively compressed time-frame, the doctors and staff proceeding w/ an admirable, if not entirely reassuring, sense of professional urgency. And so it came to pass that my oncologist only received the latest reports the night before I showed up to begin chemo infusions.

The six-month course of chemo for my particular cancer goes by the vaguely militaristic sounding acronym FOLFOX. Essentially it involves kicking back in the coolest recliner you’ve ever seen while various anti-nausea meds and the main chemical arsenal are deployed sequentially for a few hours. (What is it with all the battle metaphors?) One of the meds is more effective if administered in small bursts over 46 hours, so before you’re allowed to leave a pump is hooked up to your port and you wear this home. Its a robust little programmable squirt machine that looks more or less like the FedEx guys’ scanner, and you get to wear it on a belt around your waist or over your shoulder. So much for any shred of sartorial hipness I might have been clinging to in the waning years of middle age semi-decrepitude. On the bright side, the pump makes a rhythmic clicking sound which, while lying on the bed next to me at night, is not without a certain comforting intimacy…

“Incantations on the Road Home” 48”x64” Graphite on gessoed panel

“Incantations on the Road Home” 48”x64” Graphite on gessoed panel

Wait… what?

But I’m getting ahead of myself. Turns out there was in fact a further metastasis. Stage 4. Another decent sized tumor wrapped around a bronchial tube near the entry point into my left lung, snuggly nestled next to my heart; a weirdly poetic location given the stressful mid-life transitions I’d been enduring of late, but one that rendered it inoperable. So a second biotherapy (a monoclonal antibody called Avastin) was added to the FOLFOX chemo regimen, all to be administered over a 6 month period…

“Raven Gets In” 48”x60” Oil on canvas

“Raven Gets In” 48”x60” Oil on canvas

“I always put lime on the people I kill. Wait… are you calling 911?” ~ Drunk guy in a Mexican restaurant, as related by my friend Melissa Johnston.

And so it seems that cancer has created the mother of all liminal spaces in my life. And it is from this strangely pregnant territory that I peer out into the… I want to say abyss… but like so many words now it seems inadequate, overused, and worked to within an inch of its word-ly life by the incessant hype culture hum we wallow in. The title of some crappy movie, complete with cross-licensed plastic action figures free w/ your next Happy Meal. And seriously, how many of us ever reaches beyond the tremulous shadow of the concept and endeavors to actually process this deep down inside our whirring, buzzing lizard-brains? It crouches at the center of your chest like a cold rock, pulling you down through the turbid water more effectively than the finest cement shoes. Who the heck would want to go there voluntarily? Who…

“Fatal Shore” 48”x64” Acrylic on canvas

“Fatal Shore” 48”x64” Acrylic on canvas

Blaise Pascal wrote in “Pensées,” “We run heedlessly into the abyss after putting something in front of us to stop us from seeing it.”

It’s amazing how emotions flow just like weather.

I can go along doing what I think of as “well”: feeling optimistic, comfortable being alone, celebrating the liminal, accepting the transitory nature of things, handling the chemo, sensing health and wholeness on a walk in Whites Woods, meditating, reading, feeling a measured enthusiasm for the future w/o treating the present like just something to be got through, the master of silver linings, counting my blessings, deeply grateful for the love and support of my friends and family, acquaintances at the Post Office saying “hey, you look great”, relieved by the fact that I haven’t yet assumed the grayish-blue pallor of the wasting.

And then there will be this slow creeping intimation of unease, like a little darkening on the horizon. Just a few clouds on an otherwise sunny day…

Stillness and solitude in White’s Woods, Litchfield

Stillness and solitude in White’s Woods, Litchfield

Willem DeKooning referred to himself as a “slipping glimpser”.

As the storm gathers and starts to darken my interior landscape I can feel the slipping; the accumulation of tension in my heart and body. Fear, longing, and worry… a somatic ache that fluidly transmutes into a profound and painful spiritual dread if not checked quickly by some distraction. This is where it gets tricky being alone. It is so much easier to distract yourself from it when you are with other people. Just ignore and bury it in the cosmopolitan joy of human culture and friendship. Or loose yourself engineering a life.

“[…] almost nothing important that ever happens to you happens because you engineer it. Destiny has no beeper; destiny always leans trenchcoated out of an alley with some sort of ‘psst’ that you usually can’t even hear because you’re in such a rush to or from something important you’ve tried to engineer. ”
~ David Foster Wallace in “Infinite Jest”.

I guess this terror has always been present, and is for every human being. We do with it what we will. Tune it out. Turn it into art or literature. Transmogrify the brutal fact of our inevitable decay into infinite varieties of work and the illusion of progress. Am I thinking too much?! This is not always true. There are times when laughter and joy come in solitude and I can revel in it. But the laughter is hardened and forced when you are filled w/ grief at the prospect of loosing all you love… threatened in such an immediate, tangible way…  I’m attached to my attachments! A lousy Buddhist if ever there was one! It’s amazing how I can go along feeling buoyant about the possibility of remission… and oh the delirious possibility of “durable remission”, held out there like the most seductive of outcomes. And then just tank for awhile… fall into the dark… gazing up into a night sky perversely ornamented with PET scan constellations of cancerous cells awash in radioactively tagged glucose, collaged all over my chest and neck, blinking out an inscrutable code… exhausted from the grasping after some more universal, ever-present , capital “L” Love. God. Some hopeful bulwark against the immensity of the void surrounding my fearful and trembling self. A glimpse perhaps…

The Real Work

It may be that when we no longer know what to do

we have come to our real work,

and that when we no longer know which way to go

we have come to our real journey.

The mind that is not baffled is not employed.

The impeded stream is the one that sings.

~ Wendell Berry ~

(Collected Poems)

And so it goes. Alone with the Alone. It is a choice. A pseudo-monastic exile, punctuated by genuinely caring and helpful visits from my loved ones and the logistics of the chemo rhythm. Simone Weil said “attention is the rarest and purest form of generosity”…

"Exile Study No.4 ~ Perdita" ink and graphite on paper, 22"x 30",

“Exile Study No.4 ~ Perdita” ink and graphite on paper, 22″x 30″

And what exactly is it that I am attending to now?

Seeking Now through mindful solitude. That word, though: seeking! Seeking itself one of the most seductive of attachments. After the briefest foray into the silence, I flee back into the endless loop of intellectual and aesthetic dialogue w/ the dead. With those I’ve chosen to valorize as artistic mentors for 30 years: David Smith and Charles Olson. And into the radiating web of endlessly fascinating threads that fan out from their volcanic productions. Back into yet another painting or drawing, searching searching searching, always searching… wading through a rich but terrifying uncertainty…

“The Secret Life of Wind” 48”x64” graphite on gessoed panel

“The Secret Life of Wind” 48”x64” graphite on gessoed panel

“Sometimes when I start a sculpture, I begin with only a realized part, the rest is travel to be unfolded much in the order of a dream. The conflict for realization is what makes art not its certainty, nor its technique or material.”
–David Smith

In Alex Stein and Yahia Lababidi’s wonderful conversation, “The Artist as Mystic”, Yahia quotes Heidegger: “Longing is the agony of the nearness of the distant.” This resonates now. Not just a little! The words vibrate in my chest as if I were standing alongside a huge, beautifully wrought bell being rung. Small pieces of the rock crouching there begin to fall…

“The Chain of Memory is Resurrection I” 30”x40” graphite and acrylic on bristol board

“The Chain of Memory is Resurrection I” 30”x40” graphite and acrylic on bristol board

 

Walt PascoeWalt Pascoe is a Montreal-based visual artist who received a B.A. in Fine Art from St. Lawrence University in 1980. You can see more of his work at www.waltpascoe.com

Necks, Scars, Cancer, and Pink Worms

by Melissa D. Johnston

“It’s a giant, juicy, pink worm tied down by Lilliputians.” This was the answer to my friends, post-surgery, of what my scar looked like. To my parents it appeared that my neck had been clotheslined—not metaphorically, but with actual clothesline wire. This belief persisted long after the stitches came out and persists to this day, echoed in the surreptitious glances of strangers who may or may not wonder if I’d once had a particularly unfortunate day playing Red Rover.

In reality, the pink worm was born as the result of a partial thyroidectomy, a procedure in which a surgeon and his team removed part of my thyroid through a 2 ½ inch horizontal incision in order to whisk away a microcarcinoma (a nice, mellifluous word for a small thyroid cancer) and banish it, after much study, into the biohazard waste basket.

And so they did, and now my worm has advanced to middle-aged skin at the height of a dry winter, where moisture must regularly be applied to keep that plump, pink, youthful appearance. The rumor is that he’ll disintegrate to a ripe, flat old age and then into a grave marked by a bright, thin, barely-there line—where I’ll have to be the one to point him out if I want others to make his post mortem acquaintance. That’s the story according to my surgeon, anyway.

I still have a special fondness for his preteen years, though. The awkward stage where he still struggled with wire braces, the stitches that had to set while he lay inflamed but protected by daily swabs of hydrogen peroxide and generous amounts of petroleum jelly. A time when I made my first public appearance after surgery and couldn’t cover his raw body with a scarf because it was still too sensitive—no small deal since I’d known others with thyroidectomies who’d been asked, in all seriousness, “Did you try to slit your throat?” I didn’t fancy appearing extremely qualified as a candidate for Remedial Suicide Methods 101.

Most folks in the southern U.S. are polite. If they did think I qualified for Remedial Methods, I never knew it. That first day out, in fact, I got plenty of furtive glances, but only one direct stare, from a man whose wife tapped his arm and said, “Honey, Honey—Look!” When I turned my head, she immediately averted her eyes but her husband continued to stare until I wondered whether I’d lost a standoff when I looked away.

One person that day hadn’t seemed to notice at all. She took my order at one of my favorite local New York style delis and looked directly into my eyes, as she seemed to do with all the customers. It was only when I was getting my soft drink that she came over and said, “Do you mind my asking—what surgery did you just have?”

“I had a thyroidectomy.”

“What was it for?”

“I had thyroid cancer.”

“Oh.” She looked down and paused for a second. “I could tell it was fresh…” She finally looked back up and into my eyes. “My son was just diagnosed with leukemia.”

We talked for the next several minutes about her son, cancer, and how crazy life can be with kids. We talked about what we both had been through in the past couple of months and how the cancer diagnoses had affected our families. I walked out of the shop feeling support from someone who one hour before had been a total stranger. I hope she felt the same.

That conversation changed how I viewed my scar. These two digital pieces, which are chronicles of my wrestling with what thyroid cancer means for me, feature my preteen worm in all his pinked, stitched glory.

** 11/19/12  Update:  Alas, my worm never made it to old age. He was whipped out mid-life during a second surgery, where the surgeons, due to finding cancer in my lymph nodes, needed to complete the thyroidectomy and perform a central compartment neck dissection.  New skin puckers where he’d  been, forming glued bumpy borders I’ve yet to explore…**

**7/27/14 Update: My worm rode the wheel of life one more time. As much as he loves me and I him, we both hope it’s his last incarnation. After a third surgery and radiation, I’m hoping to get the all-clear (and it looks good!) to be able to say that I’m a one-year cancer survivor. I’ll know in a few weeks….

Dive I: The Journey Within

Dive II: The Journey Expands